My husband and I were founding members of The 22Crew. We launched our charity on 2/2/2011 (notice the date 😉) and invited two other parents of children with 22q DS to join us as trustees. We ran the charity between the four of us for six years. Our objectives included providing practical information to help families affected by the condition.
Our website was extremely popular due to the wealth of information we’d collected and developed, however over time, we started to struggle to run such a large organisation with only four trustees. We received so many lovely comments from our supporters when we closed the charity that it seemed such a shame for our website content to be lost. Therefore, I intend to incorporate whatever I can into this blog.
I’ll be creating separate downloadable pages for key topics to give more in-depth information that followers of this blog can print. I'll also include the bespoke resources I created and they too can be downloaded.
